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Sunday, May 16, 2010

Advanced Directives

Advance Directives and Do Not Resuscitate Orders
What is an advance directive?
An advance directive tells your doctor what kind of care you would like to have if you become unable to make medical decisions (if you are in a coma, for example). If you are admitted to the hospital, the hospital staff will probably talk to you about advance directives.

A good advance directive describes the kind of treatment you would want depending on how sick you are. For example, the directives would describe what kind of care you want if you have an illness that you are unlikely to recover from, or if you are permanently unconscious. Advance directives usually tell your doctor that you don't want certain kinds of treatment. However, they can also say that you want a certain treatment no matter how ill you are.

Advance directives can take many forms. Laws about advance directives are different in each state. You should be aware of the laws in your state.

What is a living will?
A living will is one type of advance directive. It only comes into effect when you are terminally ill. Being terminally ill generally means that you have less than six months to live. In a living will, you can describe the kind of treatment you want in certain situations. A living will doesn't let you select someone to make decisions for you.

What is a durable power of attorney for health care?
A durable power of attorney (DPA) for health care is another kind of advance directive. A DPA states whom you have chosen to make health care decisions for you. It becomes active any time you are unconscious or unable to make medical decisions. A DPA is generally more useful than a living will. But a DPA may not be a good choice if you don't have another person you trust to make these decisions for you.

Living wills and DPAs are legal in most states. Even if they aren't officially recognized by the law in your state, they can still guide your loved ones and doctor if you are unable to make decisions about your medical care. Ask your doctor, lawyer or state representative about the law in your state.

What is a do not resuscitate order?
A do not resuscitate (DNR) order is another kind of advance directive. A DNR is a request not to have cardiopulmonary resuscitation (CPR) if your heart stops or if you stop breathing. (Unless given other instructions, hospital staff will try to help all patients whose heart has stopped or who have stopped breathing.) You can use an advance directive form or tell your doctor that you don't want to be resuscitated. In this case, a DNR order is put in your medical chart by your doctor. DNR orders are accepted by doctors and hospitals in all states.

Most patients who die in a hospital have had a DNR order written for them. Patients who are not likely to benefit from CPR include people who have cancer that has spread, people whose kidneys don't work well, people who need a lot of help with daily activities, or people who have severe infections such as pneumonia that require hospitalization. If you already have one or more of these conditions, you should discuss your wishes about CPR with your doctor, either in the doctor's office or when you go to the hospital. It's best to do this early, before you are very sick and are considered unable to make your own decisions.

Should I have an advance directive?
Most advance directives are written by older or seriously ill people. For example, someone with terminal cancer might write that she does not want to be put on a respirator if she stops breathing. This action can reduce her suffering, increase her peace of mind and increase her control over her death. However, even if you are in good health, you might want to consider writing an advance directive. An accident or serious illness can happen suddenly, and if you already have a signed advance directive, your wishes are more likely to be followed.

How can I write an advance directive?
You can write an advance directive in several ways:

Use a form provided by your doctor.
Write your wishes down by yourself.
Call your health department or state department on aging to get a form.
Call a lawyer.
Use a computer software package for legal documents.
Advance directives and living wills do not have to be complicated legal documents. They can be short, simple statements about what you want done or not done if you can't speak for yourself. Remember, anything you write by yourself or with a computer software package should follow your state laws. You may also want to have what you have written reviewed by your doctor or a lawyer to make sure your directives are understood exactly as you intended. When you are satisfied with your directives, the orders should be notarized if possible, and copies should be given to your family and your doctor.

Can I change my advance directive?
You may change or cancel your advance directive at any time, as long as you are considered of sound mind to do so. Being of sound mind means that you are still able to think rationally and communicate your wishes in a clear manner. Again, your changes must be made, signed and notarized according to the laws in your state. Make sure that your doctor and any family members who knew about your directives are also aware that you have changed them.

If you do not have time to put your changes in writing, you can make them known while you are in the hospital. Tell your doctor and any family or friends present exactly what you want to happen. Usually, wishes that are made in person will be followed in place of the ones made earlier in writing. Be sure your instructions are clearly understood by everyone you have told.

10 comments:

Unknown said...

The encouragement to complete an advance directive that speaks to individual needs is increasingly important. A recent study published in the New England Journal of Medicine (see: http://content.nejm.org/cgi/content/short/362/13/1211) emphasized that advance directives are indeed effective in ensuring that one's wishes are honored. Many studies also indicate that the more detailed and complete your advance directive, the more likely your wishes will be followed. Free state-standard advance directives for immediate download can be easily obtained (see, for example: http://www.lifecaredirectives.com/statutory.html).

However, extensive research has demonstrated that there are significant drawbacks to using a standard state advance directive. As one research group noted, “...the development of statutory forms occurs in the legislative arena, [so] their content is the result of a political rather than a ‘scientific’ process,” and because of “political compromise, ...many of the forms ultimately passed by the legislatures are not optimal from a consumer perspective” (see: Hoffmann, DE; etal. The dangers of directives. Journal of Law, Medicine & Ethics. 1996;24(1)(Spring):5-17).

The American Bar Association agrees, noting: “The statutory advance directive is not necessarily the exclusive, or even the best, pathway for individuals to follow,” and suggests that alternative documents “may be especially helpful as a...replacement for statutory forms where restrictions in a statutory directive prevents the individual from fully expressing his or her wishes” (see: American Bar Association, Patient Self Determination Act State Law Guide, 1991).

One comprehensive directive that is valid nationwide is the Lifecare Advance Directive (see: www.LifecareDirectives.com). Another popular alternative advance directive is the Five Wishes living will (see: www.agingwithdignity.org/five-wishes.php). The Center for Practical Bioethics also offers a useful planning workbook (see: http://www.practicalbioethics.org/cpb.aspx?pgID=986).

Readers might want to explore these available documents further, as the choice of the document used can be very important. Individuals should use the documents that best suit their needs and personal life goals. Doing so can save a great deal of unnecessary suffering and greatly reduce the burdens that families experience at these very difficult times, as well.

Unknown said...

Thank you for all the very useful information!
My reasons for pushing for a "complete" advanced directive is personal. My mother was dying and when they checked her advanced directive on file it was a joke. It spelled nothing out as to her wishes. Even my step-father had no idea of what she wanted. It made a sad situation of losing our mother much worse to then have to make a decision on how much life saving procedures she would have to endure. In the end she died on her own (as it should be), but it could have ended up much worse.

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Eleanor Briones said...

Well, the morality of consulting on behalf of a patient is one thing. Quality and level of health service is another. I feel, that's really as equally weighty, if not more so. I mean, the advanced directive should be able to respond to a specific infliction, like a good medicine should. But it fundamentally services a patient if he/she gets top-level consultation and treatment as well.

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