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This I know.................

This I know.................

Tuesday, December 6, 2011

Sorry for my absence

I went to my Pulmonologist today. For a couple weeks I have really struggled getting air in or out. I had already done the antibiotics and prednisone and it didn't work. He said I have been having an acute exacerbation and most likely alveoli are bursting. I am scheduled for more tests and a spirometry test in February. He put me on a new long term drug called Daliresp.  It has some real nasty side effects. 


He told me that from this point out there is little he can do to ease my pain and breathing issues without surgery. So... when things get bad from now on it means a hospital stay, or major pain medication at home. He told me to limit my exertion but to move about as much as possible. I think that was his way of telling me that exercise is out. I'll do what I can in my chair and with weights.

This just was quite a set back for me. Seems like when things begin to go downhill, it goes quickly.
 
All this and I still don't have my computer back.  I am not too adept at using my laptop for blogging.  I will try and do better and keep you updated on how things are going. 
Don't forget about me!  lol

20 comments:

Cath said...

So glad to hear from you was getting worried about you it seemed a long time between blogs and i knew you wasnt feeling well.Hope things soon start to improve for you,take care from Cath x

Unknown said...

Thanks Cath,

Besides the fact I haven't felt the best, this laptop and I don't get along very well. lol Merry Christmas and Happy Holidays to you.

Anonymous said...

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Anonymous said...

aaaahhhh, if we could just look back at life and change things...isn't that the bitch!!! "Hang in there" doesn't quite cut it: I know, sweet sister...
Savannah

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Doris said...

I know how you feel.I'm where you are in my treatment. The Daliresp side effects are wicked. My next appt. is Dec. 19. We're pretty much in the same place. Hope you feel better soon. From my lips to GOD's ear.

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Unknown said...

Doris, I am so sorry to hear you are in my boat. Not that I thought I was in this alone... I just hate that good people have to go through this.

Savannah as always you are right here to support me. Thank you my friend.

Anonymous, it always surprises me (in a good way) that this blog of mine is note worthy. It pleases me very much that it may help just one person, or open someone's eyes to this terrible disease.

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